Mayo Clinic BioBank : A world-class biorepository infrastructure.
SpecimenCentral : A database of existing biobanks around the world.
Videos and Webinars
Marketing Your Biobank Collection Effectively
Making Your Organization's Registry and/or Biobank a Reality
Advocates are Leaders in Biobanking
How disease advocacy organizations participate in clinical research: a survey of genetic organizations:
Contributors: Landy DC, Brinich MA, Colten ME, Horn EJ, Terry SF, Sharp RR.
From patients to partners: participant-centric initiatives in biomedical research. :
Contributors: Kaye J, Curren L, Anderson N, Edwards K, Fullerton SM, Kanellopoulou N, et al.
Genetic Alliance Registry and BioBank: a novel disease advocacy-driven research solution. Personalized Medicine.:
Contributors: Terry S, Horn E, Scott J, Terry P.