Existing Biobanks

Mayo Clinic BioBank : A world-class biorepository infrastructure.

SpecimenCentral : A database of existing biobanks around the world.

 

Videos and Webinars

Marketing Your Biobank Collection Effectively

Biobank Governance

Making Your Organization's Registry and/or Biobank a Reality

Advocates are Leaders in Biobanking

 

Publications

How disease advocacy organizations participate in clinical research: a survey of genetic organizations:

Contributors: Landy DC, Brinich MA, Colten ME, Horn EJ, Terry SF, Sharp RR.

 

From patients to partners: participant-centric initiatives in biomedical research. :

Contributors: Kaye J, Curren L, Anderson N, Edwards K, Fullerton SM, Kanellopoulou N, et al.

 

Genetic Alliance Registry and BioBank: a novel disease advocacy-driven research solution. Personalized Medicine.:

Contributors: Terry S, Horn E, Scott J, Terry P.