Overview

STARTING A REGISTRY AND/OR BIOBANK

Welcome to the Getting Started Section! This section is dedicated to those considering starting a registry and/or biobank and want to contribute to furthering understanding of their disease.

Additionally, this section will introduce the process of joining and participating in the Genetic Alliance Registry and BioBank. If your organization is keen on joining the Genetic Alliance Registry and BioBank, this will give you an idea of what to expect and how we operate.